The Resource Silent partners : human subjects and research ethics, Rebecca Dresser
Silent partners : human subjects and research ethics, Rebecca Dresser
Resource Information
The item Silent partners : human subjects and research ethics, Rebecca Dresser represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in Yuma County Library District.This item is available to borrow from 1 library branch.
Resource Information
The item Silent partners : human subjects and research ethics, Rebecca Dresser represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in Yuma County Library District.
This item is available to borrow from 1 library branch.
- Summary
- When is a human study ethical? For years, science and society have struggled with this question. Experts have put great effort into developing ethical principles and rules that adequately protect and respect volunteers in studies aimed at improving human health. But experts have missed something important. They have created a research ethics system without the help of people who know what it is like to be a research subject. This is a serious omission. Experienced research subjects can make valuable contributions to research ethics. People who have been in studies have information about the experience that other people can overlook. Their experience as subjects gives them special insights into ethics, too. Experienced subjects also know about problems that can lead people to refuse to join studies, or drop out before studies are complete. Scientists and ethicists often speak of subjects as partners in research, but the reality is quite different. Experienced subjects are rarely appointed to the advisory groups that create guidelines for ethical research, or to the committees that review individual studies to determine whether they meet ethical and regulatory standards. A large body of work describes the perceptions and viewpoints of people who have participated in research. But experts rarely use this material to guide improvements in human subject protection. Although subjects have the power to decide whether to participate in a study, they have little control over anything else that goes on in research. Silent Partners moves research subjects to the forefront. It examines what research participation is like for healthy volunteers and patients. It explains why subjects' voices should influence research ethics. Silent Partners shows how experienced research subjects can become real-not just symbolic-partners in research
- Language
- eng
- Extent
- xvii, 302 pages
- Contents
-
- Subject perspectives : the missing element in research ethics
- Personal knowledge and study participation
- The everyday ethics of human research
- The hidden world of subjects : rule-breaking in clinical trials
- Participants as partners in genetic research
- Terminally ill patients and the right to try experimental drugs
- Embedded ethics in developing country research
- Research subjects as literary subjects
- How to hear subjects
- Isbn
- 9780190459277
- Label
- Silent partners : human subjects and research ethics
- Title
- Silent partners
- Title remainder
- human subjects and research ethics
- Statement of responsibility
- Rebecca Dresser
- Language
- eng
- Summary
- When is a human study ethical? For years, science and society have struggled with this question. Experts have put great effort into developing ethical principles and rules that adequately protect and respect volunteers in studies aimed at improving human health. But experts have missed something important. They have created a research ethics system without the help of people who know what it is like to be a research subject. This is a serious omission. Experienced research subjects can make valuable contributions to research ethics. People who have been in studies have information about the experience that other people can overlook. Their experience as subjects gives them special insights into ethics, too. Experienced subjects also know about problems that can lead people to refuse to join studies, or drop out before studies are complete. Scientists and ethicists often speak of subjects as partners in research, but the reality is quite different. Experienced subjects are rarely appointed to the advisory groups that create guidelines for ethical research, or to the committees that review individual studies to determine whether they meet ethical and regulatory standards. A large body of work describes the perceptions and viewpoints of people who have participated in research. But experts rarely use this material to guide improvements in human subject protection. Although subjects have the power to decide whether to participate in a study, they have little control over anything else that goes on in research. Silent Partners moves research subjects to the forefront. It examines what research participation is like for healthy volunteers and patients. It explains why subjects' voices should influence research ethics. Silent Partners shows how experienced research subjects can become real-not just symbolic-partners in research
- Cataloging source
- NLM
- http://library.link/vocab/creatorName
- Dresser, Rebecca
- Dewey number
- 174.2/8
- Index
- index present
- LC call number
- R853.H8
- LC item number
- D74 2017
- Literary form
- non fiction
- Nature of contents
- bibliography
- http://library.link/vocab/subjectName
-
- Human experimentation in medicine
- Research
- Medical ethics
- Human experimentation in medicine
- Label
- Silent partners : human subjects and research ethics, Rebecca Dresser
- Bibliography note
- Includes bibliographical references and index
- Carrier category
- volume
- Carrier category code
-
- nc
- Carrier MARC source
- rdacarrier
- Content category
- text
- Content type code
-
- txt
- Content type MARC source
- rdacontent
- Contents
- Subject perspectives : the missing element in research ethics -- Personal knowledge and study participation -- The everyday ethics of human research -- The hidden world of subjects : rule-breaking in clinical trials -- Participants as partners in genetic research -- Terminally ill patients and the right to try experimental drugs -- Embedded ethics in developing country research -- Research subjects as literary subjects -- How to hear subjects
- Control code
- ocn944956464
- Dimensions
- 22 cm
- Extent
- xvii, 302 pages
- Isbn
- 9780190459277
- Lccn
- 2016012145
- Media category
- unmediated
- Media MARC source
- rdamedia
- Media type code
-
- n
- System control number
- (OCoLC)944956464
- Label
- Silent partners : human subjects and research ethics, Rebecca Dresser
- Bibliography note
- Includes bibliographical references and index
- Carrier category
- volume
- Carrier category code
-
- nc
- Carrier MARC source
- rdacarrier
- Content category
- text
- Content type code
-
- txt
- Content type MARC source
- rdacontent
- Contents
- Subject perspectives : the missing element in research ethics -- Personal knowledge and study participation -- The everyday ethics of human research -- The hidden world of subjects : rule-breaking in clinical trials -- Participants as partners in genetic research -- Terminally ill patients and the right to try experimental drugs -- Embedded ethics in developing country research -- Research subjects as literary subjects -- How to hear subjects
- Control code
- ocn944956464
- Dimensions
- 22 cm
- Extent
- xvii, 302 pages
- Isbn
- 9780190459277
- Lccn
- 2016012145
- Media category
- unmediated
- Media MARC source
- rdamedia
- Media type code
-
- n
- System control number
- (OCoLC)944956464
Library Links
Embed
Settings
Select options that apply then copy and paste the RDF/HTML data fragment to include in your application
Embed this data in a secure (HTTPS) page:
Layout options:
Include data citation:
<div class="citation" vocab="http://schema.org/"><i class="fa fa-external-link-square fa-fw"></i> Data from <span resource="http://link.yumalibrary.org/portal/Silent-partners--human-subjects-and-research/nOe1nFoSKJo/" typeof="Book http://bibfra.me/vocab/lite/Item"><span property="name http://bibfra.me/vocab/lite/label"><a href="http://link.yumalibrary.org/portal/Silent-partners--human-subjects-and-research/nOe1nFoSKJo/">Silent partners : human subjects and research ethics, Rebecca Dresser</a></span> - <span property="potentialAction" typeOf="OrganizeAction"><span property="agent" typeof="LibrarySystem http://library.link/vocab/LibrarySystem" resource="http://link.yumalibrary.org/"><span property="name http://bibfra.me/vocab/lite/label"><a property="url" href="http://link.yumalibrary.org/">Yuma County Library District</a></span></span></span></span></div>
Note: Adjust the width and height settings defined in the RDF/HTML code fragment to best match your requirements
Preview
Cite Data - Experimental
Data Citation of the Item Silent partners : human subjects and research ethics, Rebecca Dresser
Copy and paste the following RDF/HTML data fragment to cite this resource
<div class="citation" vocab="http://schema.org/"><i class="fa fa-external-link-square fa-fw"></i> Data from <span resource="http://link.yumalibrary.org/portal/Silent-partners--human-subjects-and-research/nOe1nFoSKJo/" typeof="Book http://bibfra.me/vocab/lite/Item"><span property="name http://bibfra.me/vocab/lite/label"><a href="http://link.yumalibrary.org/portal/Silent-partners--human-subjects-and-research/nOe1nFoSKJo/">Silent partners : human subjects and research ethics, Rebecca Dresser</a></span> - <span property="potentialAction" typeOf="OrganizeAction"><span property="agent" typeof="LibrarySystem http://library.link/vocab/LibrarySystem" resource="http://link.yumalibrary.org/"><span property="name http://bibfra.me/vocab/lite/label"><a property="url" href="http://link.yumalibrary.org/">Yuma County Library District</a></span></span></span></span></div>
