Silent partners : human subjects and research ethics

Resource Information

The work Silent partners : human subjects and research ethics represents a distinct intellectual or artistic creation found in Yuma County Library District. This resource is a combination of several types including: Work, Language Material, Books.

Label

Silent partners : human subjects and research ethics

Title remainder

human subjects and research ethics

Statement of responsibility

Rebecca Dresser

Creator

• Dresser, Rebecca

Author

• Dresser, Rebecca

Subject

• Human experimentation in medicine
• Human experimentation in medicine -- Moral and ethical aspects
• Medical ethics
• Research -- Moral and ethical aspects

Language

eng

Summary

When is a human study ethical? For years, science and society have struggled with this question. Experts have put great effort into developing ethical principles and rules that adequately protect and respect volunteers in studies aimed at improving human health. But experts have missed something important. They have created a research ethics system without the help of people who know what it is like to be a research subject. This is a serious omission. Experienced research subjects can make valuable contributions to research ethics. People who have been in studies have information about the experience that other people can overlook. Their experience as subjects gives them special insights into ethics, too. Experienced subjects also know about problems that can lead people to refuse to join studies, or drop out before studies are complete. Scientists and ethicists often speak of subjects as partners in research, but the reality is quite different. Experienced subjects are rarely appointed to the advisory groups that create guidelines for ethical research, or to the committees that review individual studies to determine whether they meet ethical and regulatory standards. A large body of work describes the perceptions and viewpoints of people who have participated in research. But experts rarely use this material to guide improvements in human subject protection. Although subjects have the power to decide whether to participate in a study, they have little control over anything else that goes on in research. Silent Partners moves research subjects to the forefront. It examines what research participation is like for healthy volunteers and patients. It explains why subjects' voices should influence research ethics. Silent Partners shows how experienced research subjects can become real-not just symbolic-partners in research

Cataloging source

NLM

Dewey number

174.2/8

Index

index present

LC call number

R853.H8

LC item number

D74 2017

Literary form

non fiction

Nature of contents

bibliography